web videos
Pudlak Videos
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Each year, mine and my daughter's friends get together in hopes of raising funds to help fight the rare and incurable disease called Hermansky Pudlak Syndrome. Most people with this syndrome usually d... -
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Time to walk in the Human Race 2008 in Greensboro, North Carolina. The Human Race is a 5K walk/run held to raise donations to various causes in the Triad area. Karen and Holly organize walkers and do... -
This is the Senior Project Video Holly created about her mother who has HPS, and the fund raising event called the Human Race.... -
Karen was the Channel 2 Volunteer of the Week in February 2007. She discusses Hermansky Pudlak Syndrome and the volunteer work she does to raise awareness of the disease.... -
(Add &fmt=18 to the address line above to watch in Hires mode!). Time to walk in the Human Race 2008 in Greensboro, North Carolina. The Human Race is a 5K walk/run held to raise donations to various ... -
HPS Conference March 29, 2008 - Long Island, New York Legally blind with Albinism, Candice and Crystal were diagnosed with Hermansky Pudlak Syndrome at the age of 13. Although they only use a little ... -
Part 2 of the HPS / Human Race Walk-Run on Saturday March 24, 2007. I'm hot and tired now.... need a cold Diet Coke.... enjoy, ya'll !!... -
HPS Conference March 28, 2008 - Long Island, New York Friday Evening We start off the evening by meeting all of our friends at the Hermansky-Pudlak Syndrome Network Conference. After getting reacquai... -
Kimmay and I stuck in a lil flood....yes!...